WWW.DISSERTATION.XLIBX.INFO
FREE ELECTRONIC LIBRARY - Dissertations, online materials
 
<< HOME
CONTACTS



Pages:     | 1 |   ...   | 40 | 41 || 43 |

«Tactics of Diabetes Control Turkish immigrant experiences with chronic illness in Berlin, Germany. Cornelia Guell PhD by Research The University of ...»

-- [ Page 42 ] --

Marginality is thus not only relational, experiencing marginality does not simply mean to be confined to the societal periphery, but it is shaped by its activities rather than inertness. This thesis framed agency as tactics of diabetes control and explored what these activities and activism involved: agency could mean the everyday practices of diabetes control, learning about diabetes, monitoring their diabetic bodies and managing lives with diabetes; agency meant the social momentum in diabetes care, the social relations and roles that diabetes created, and the micropolitics that shaped any involvement in diabetes care.

All in all, the ethnographic data in this thesis could speak to a range of theoretical concepts, pointed to their strengths but also limitations and proposed alternative avenues. This is as this thesis set out to explore a broad range of experiences with diabetes in Berlin’s Turkish population. I believe that understanding this experience comprehensively (in Weber’s sense, Verstehen, 1922), required ethnographic “thick description” (Geertz 1973). This thesis thus told the story both of personal experiences with chronic illness as a Turkish Berliner and everyday practices of diabetes self-management, and in what way diabetes demanded a communal response within the Turkish-origin population in Berlin, in order to capture and account for the interrelations of individual and collective experience of illness and marginality.

Limitations and future research: outlook on bioethics Following the contributions, I will finally briefly discuss the limitations – in conceptualisation and scope – of this study and propose future research projects. First of all, this thesis is a privileged view on those Turkish Berliners who are engaged in their diabetes care, those who are taken care of or take care of themselves. The decision to put these people centre stage is to show that such experiences of active healthcare practices exist and are significant in individual and communal lives. In order to expand from this particularity, I suggest that such activities should be explored in other localities than Berlin, by other marginal groups than Turkish migrants and concerning other issues than diabetes. A complementary research project, on the other hand, could or should seek out those others who decided not to join such groups, or those who fail to be addressed by them, those who feel defeated by their diabetes, or in fact those who are organised in different ways, perhaps not in terms of Turkishness but perhaps religion, locality, or gender. Planning such research such people could be reached by looking at non-health related social groups. Berlin, for example, also has numerous women’s groups. As this research project was limited to a female researcher, the main informants that provided insight into the everyday lives of diabetes management were women. A future research project could be include a mixed team of researchers, male researchers to reach men, perhaps Turkish-origin researchers to gain access to patients that did not open up to the German researcher of this project. Future research with those who are not involved in such organised diabetes self-management could address new research questions that explore if tactics are indeed reserved to the “copers” (Kelleher 1988), or do those who feel defeated by their diabetes nonetheless engage actively with their diabetes?

The second limitation of this study is that, although gender appears as a recurring issue in this thesis, it was not explicitly addressed. I decided that an adequate discussion of gender issues would have been beyond the scope of this work and did not fit the line of argument in which this ethnography was crafted. Studies, however, suggest that Muslim women in particular face barriers to health and healthcare (e.g. Lawton et al. 2006, on barriers to physical activity in British South Asians with diabetes). An indication of this can be found in Chapter 7.2 that mentions in which way some women in the self-help group experience tensions in their family due to their active social lives around diabetes care. Another limitation is that ideas of ethics were raised but only assigned marginal significance; in Section 2, Foucault’s questions around ethical practices were considered marginal to the lived bodily experience of illness, Section 3 only mentioned ethical debates in terms of how they guard and qualify social interaction. That said, I encountered in the course of this research project that there are inherently ethical questions involved in chronic illness prevention and care that can be addressed and explored by anthropological research.

For future avenues of research I thus like to end this thesis with a proposition beyond the exploration of everyday healthcare practices and politics. I pointed out that diabetes is perceived as a mundane illness, perhaps unspectacular, without much medical or technological innovation, and yet, I argued that it is a fruitful field of anthropological inquiry, as I joined experiences of chronic illness and marginality.

Here, I would like to propose an exploration of bioethics.

Social scientists already contribute to interdisciplinary bioethics debates in the realm of biotechnologies by investigating how users of human genetics and reproductive medicine experience challenges to their biological identities and body integrity. I suggest that issues of obesity and chronic illness should receive similar attention and be addressed in similar ways. However, anthropology seems reluctant to take on such issues. Interrelations such as HIV/AIDS and poverty are enthusiastically discussed, perhaps because anthropologists’ stance seems unambivalent: people with HIV/AIDS should receive recognition for their plight and, most importantly, medication, irrespective of their financial means, geographic





location or cause of infection. Issues around obesity-related illness are less clear cut:

of course, people should receive care, irrespective of their background, but if care involves changing lifestyles, public opinion is torn. Can people be told off for serving their children frequent take-aways? Or is the issue one of teaching them how to cook healthy meals? Should society intervene in the first place, or would nonintervention be equivalent to not providing adequate healthcare?

If Turkish Berliners with diabetes learn that pide bread should be replaced by whole-meal bread, is it really their choice if the alternative may be a future life with blindness or dialysis. My research participants would answer that lifestyle changes are acceptable if they are practical in their everyday lives and make everyday lives more habitable and that the question of ethics is one of access to information and care. I do not suggest that anthropologists should necessarily position themselves in this debate but to explore everyday negotiations of such ethical debates and how varied and heterogeneous perspectives may challenge established values of health, care and choice (cf. Mol 2008). What I propose is for medical anthropologists to discover obesity, diabetes and cardio-vascular diseases as fruitful and complex fields of and contributions to bioethics.

–  –  –

ADA American Diabetes Association DMP Disease Management Programme GDM gestational diabetes mellitus HbA1c Haemoglobin A1C (‘glycosylated haemoglobin’) HDL high-density lipoprotein (‘good’ cholesterol) IDDM insulin-dependent diabetes mellitus IDF International Diabetes Federation IGT impaired glucose tolerance IQWiG Institute for Quality and Efficiency in Health Care (Institut für Qualität und Wirtschaftlichkeit im Gesundheitswesen) LDL low-density lipoprotein (‘bad’ cholesterol) MODY maturity onset diabetes of the young MRDM malnutrition-related diabetes mellitus NGO non governmental organisation NICE National Institute of Clinical Excellence NIDDM non-insulin dependent diabetes mellitus

–  –  –

Abu Sayeed, M., Ali, L., Hussain, M.Z., Rumi, M.A., Banu, A. and Azad Khan, A.K.

(1997) ‘Effect of socioeconomic risk factors on the difference in prevalence of diabetes between rural and urban populations in Bangladesh’, Diabetes Care 20: 551-555.

Agyemang, C. and Bhopal, R.S.

(2002) ‘Is the blood pressure of South Asian adults in the UK higher or lower than that in European white adults? A review of cross-sectional data.’ Journal of Human Hypertension 16, 11: 739-751.

Almind, K., Doria, A. and Kahn, C.R.

(2001) ‘Putting the genes for type II diabetes on the map’, Nature Medicine 7: 277Anwar, M.

(1979) The myth of return: Pakistanis in Britain, London: Heinemann.

Aykol, E.

(2002) Kreuzberg is in Germany. Private View, Spring: 76-79.

Bacon, F.

(1612) Essaies: Religious meditation. Places of perswasion and disswasion, London.

Banks, M.

(1996) Ethnicity: Anthropological Constructions, London: Routledge.

Barth, F. (ed.) (1969) Ethnic Groups and Boundaries: The Social Organization of Culture Difference, Boston: Little Brown & Co.

Baumann, G.

(1996) Contesting Culture: Discourses of identity in multi-ethnic London, Cambridge: Cambridge University Press.

BBC News (2008) Diabetes self-tests “no benefit”, 18 April. Retrieved 18 April 2008, from http://news.bbc.co.uk/1/hi/health/7352321.stm Beer, G.

(1996) Open fields: science in cultural encounter, Oxford: Clarendon Press.

Berry, J.W.

(1994) ‘Acculturation and psychological adaptation: An overview’, in A.M. Bouvy et al.

(eds.) Journeys into cross-cultural psychology, Lisse: Swets & Zeitlinger.

Bharadwaj, A.

(2008) ‘Biosociality and biocrossings’, in S. Gibbon and C. Novas (eds.) Biosocialities, Genetics and the Social Sciences: Making Biologies and Identities, London and New York: Routledge, pp. 98-116.

Bliss, M.

(1996) The discovery of insulin, Toronto: McClelland & Stewart Inc.

Bodemann, Y.M.

(1980) Patronage or Class Rule? Kinship, Local Cliques and the State in Rural Sardinia, Structural Analysis Program, Working Paper 12, Department of Sociology, Toronto.

Boissevain, J.

(1979) ‘Network Analysis: A Reappraisal’, Current Anthropology 20, 2: 392-394.

Borneman, J.

(1992) Belonging to the two Berlins: kin, state, nation, Cambridge: Cambridge University Press.

Borovoy, A. and Hine, J.

(2008) ‘Managing the unmanageable: Russian Jewish émigrés and the biomedical culture of diabetes care’, Medical Anthropology Quarterly 22, 1: 1-26.

Bowker, G.C. and Leigh Star, S.

(2000) Sorting Things Out: Classification and Its Consequences, New Baskerville:

MIT Press.

Broom, D. and Whittaker A.

(2004) ‘Controlling diabetes, controlling diabetics: moral language in the management of diabetes type 2’, Social Science and Medicine 58: 2371– 2382.

Bury, M.

(1982) ‘Chronic illness as biographical disruption’, Sociology of Health and Illness 4: 167-182.

Campbell, R., Pound, P., Pope, C., Britten, N., Pill, R., Morgan, M. and Donovan, J.

(2003) ‘Evaluating meta-ethnography: a synthesis of qualitative research on lay

experiences of diabetes and diabetes care’, Social Science and Medicine 56:

671–684.

Carter, S.

(1995) ‘Boundaries of danger and uncertainty: an analysis of the technological

culture of risk assessment’, in J. Gabe (ed.) Medicine, Health and Risk:

Sociological Approaches, Oxford: Blackwell, pp. 133-150.

Certeau, M. de (1984) The practice of everyday life. Berkeley, Los Angeles, London: California University Press.

Charmaz, K.

(1983) ‘Loss of self: a fundamental form of suffering in the chronically ill’, Sociology of Health and Illness 5, 2: 168-195.

Chesla C.A. and Chun K.M.

(2005) ‘Accommodating Type 2 Diabetes in the Chinese American Family’, Qualitative Health Research 15: 240-255.

Chowdhury, A.M., Helman, C. and Greenhalg, T.

(2000) ‘Food beliefs and practices among British Bangladeshis with diabetes:

implications for health education’, Anthropology and Medicine 7, 2: 209Clarke, J.A.

(2004) Islam, Charity, and Activism: Middle-Class Networks and Social Welfare in Egypt, Jordan, and Yemen, Bloomington: Indiana University Press.

Clifford, J. and Marcus, G.E.

(eds.) (1986) Writing Culture: The Poetics and Politics of Ethnography, Berkeley:

University of California Press.

Clifford, J.

(1997) ‘Spatial practices: Fieldwork, Travel, and the Disciplining of Anthropology’,

in A. Gupta and J. Ferguson (eds.) Anthropological Locations, Berkeley:

University of California Press, pp. 185-222.

Cohen, A. (ed.) (1974) Urban Ethnicity, London: Tavistock.

Cohen, L.

(2005) ‘Operability, Bioavailability, and Exception’, in A. Ong and S.J. Collier (eds.) Global Assemblages: Technology, Politics, and Ethics as Anthropological Problems, Malden, Oxford and Victoria: Blackwell, pp. 79Cohen, M.Z., Tripp, Reimer, T., Smith, C., Sorofman, B. and Liveley, S.

(1994) ‘Explanatory models of diabetes: Patient practitioner variation’, Social Science and Medicine 38, 1: 59-66.

Coleman, S and Collings, P.

(2006) ‘Introduction: ‘Being...Where?’ Performing Fields on Shifting Grounds’, in S. Coleman and P. Collins (eds.) Space, Place and Context in Anthropology, Oxford: Gerg, pp. 1-21.

Comaroff, J.

(1992) ‘Of Totemism and Ethnicity. Consciousness, practice and the signs of inequality’, in J. Comaroff (ed.) Ethnography and the Historical Imagination, Colorado: Westview Press, pp. 49-67.

Connolly, V., Unwin, N., Sherriff, P., Bilous, R. and Kelly, W.

(2000) ‘Diabetes prevalence and socioeconomic status: a population based study showing increased prevalence of type 2 diabetes mellitus in deprived areas’, Journal of Epidemiology and Community Health, 54: 173-177.

Cooke, M. and Lawrence, B.B.

(eds.) (2005) Muslim Networks: From Hajj to Hip Hop, Chapel Hill and London:

University of North Carolina Press.

Corrigan, H.S.W.

(1967) ‘German-Turkish Relations and the Outbreak of War in 1914: A Reassessment’, Past and Present 36: 144-152.

Craig, C.L., Marshall, A.L., Sjöström, M., Bauman, A.E., Booth, M.L., Ainsworth, B.E., Pratt, M., Ekelund, U., Yngve, A., Sallis, J.F. and Oja, P.



Pages:     | 1 |   ...   | 40 | 41 || 43 |


Similar works:

«Attend this one day GS1 UK healthcare conference for free. Understand what impact the Department of Health’s ‘Coding for Success’ policy will have on your organisation and how auto identification can help improve patient safety. The Department of Health has recommended that both the NHS and healthcare industry use the GS1 System of coding on all medicines and medical devices. Leading experts in healthcare including the NHS Purchasing and Supply Agency, National Patient Safety Agency, NHS...»

«PACKAGE LEAFLET 1 Package leaflet: Information for the user /./ 70 mg tablets Alendronic acid Read all of this leaflet carefully before you start taking this medicine because it contains important information for you.Keep this leaflet. You may need to read it again.If you have any further questions, ask your doctor or pharmacist.This medicine has been prescribed for you only. Do not pass it on to others. It may harm them, even if their signs of illness are the same as yours. If you get any side...»

«Assertive communication: making yourself heard in a health care team THIS CLINICAL TRAINING INITIATIVE IS SUPPORTED BY FUNDING FROM THE AUSTRALIAN GOVERNMENT UNDER THE INCREASED CLINICAL TRAINING CAPACITY (ICTC) PROGRAM Background Clear, confident, respectful and open communication maximises the effectiveness of health care teams who often operate within an environment that is busy, crowded and with competing priorities (Curtis, Tzannes, & Rudge, 2011). Poor patient outcomes, adverse events and...»

«' ~.d'''''~l.llVI('I'.s',O Public Health SeNice 5 (,,'f DEPARTMENT OF HEAL m & HUM SERVICES Food and Drug Administration Silver Spring, MD 20993 TRANSMITTED BY FACSIMILE Howard Solomon Chief Executive Officer Forest Laboratories, Inc. 909 Third Avenue New York, NY10022 RE: NDA #21-742 SystoliclI (nebivolol) Tablets MACMIS #16299 WARNING LETTER Dear Mr. Solomon: The Division of Drug Marketing, Advertising, and Communications (DDMAC) of the U.S. Food and Drug Administration (FDA) has reviewed an...»

«Reportable Diseases in Peterborough County-City 2012 Author: Andrew Kurc, Epidemiologist Peterborough County-City Health Unit This document is also available in an accessible format on www.pcchu.ca or upon request by calling 705-743-1000.Reference: Peterborough County-City Health Unit. Reportable Diseases in Peterborough County-City 2011. April, 2013.Lead Author: Reportable Diseases in Peterborough County-City 2011 was written in principle by Andrew R. Kurc; Epidemiologist, Peterborough...»

«Dormitory Authority Meeting August 6, 2014 The Dormitory Authority of the State of New York met in a Regular Meeting at DASNY’s New York City Office, One Penn Plaza, 52nd Floor, New York, New York at 9:30 a.m. on Wednesday, August 6, 2014. The Meeting was called to order by the Chair. Roll call was taken and a quorum was present. Those Members present for and absent from the Meeting were as follows: Members Present Alfonso L. Carney, Jr., Chair, Member John B. Johnson, Jr., Vice Chair, Member...»

«PedsCases Podcast Scripts This is a text version of a podcast from Pedscases.com on the “Approach to Leukocoria.” These podcasts are designed to give medical students an overview of key topics in pediatrics. The audio versions are accessible on iTunes or at www.pedcases.com/podcasts. Approach to Leukocoria Developed by Chris Novak, Dr. Natashka Pollock and Dr. Mel Lewis for PedsCases.com. March 1, 2016 Intro Hi everyone, my name is Chris Novak. I am a medical student at the University of...»

«Kathryn M. Curtis Page 1 of 12 Kathryn M. Curtis, Ph.D. Division of Reproductive Health Centers for Disease Control and Prevention MS K-34, 4770 Buford Highway NE Atlanta, GA 30341-3724 770-488-6397 kmc6@cdc.gov EDUCATION School of Public Health, University of North Carolina Chapel Hill. Department of Epidemiology. Concentration in Reproductive Health Epidemiology. Ph.D. received May 1996. Dissertation: Determinants of Time to Pregnancy in the Ontario Farm Family Health Study School of Public...»

«Helping Health Anxiety Helping Health Anxiety Helping Health Anxiety Module 7 Challenging Avoidance and Safety Behaviours Introduction 2 What are Avoidance and Safety Behaviours? 2 Graded Exposure 2 My Avoidance & Safety Behaviours 3 Planning Your Goals 5 Building Your Stepladder 6 Exposure Stepladder Example 7 Exposure Stepladder Worksheet 9 Taking a Step 10 Climbing Your Stepladder 10 Module Summary 13 Centrelinical for C Interventions Page 1 Module 7: Reducing Avoidance and Safety Behaviours...»

«SORRY Written by R. David Owens 404-394-4353 INT. COMMERCIAL TV SET DAY An actor dressed as a DOCTOR, Expensive shirt and tie, open white coat, wearing a stethoscope and holding a clipboard, points with a pen to symptoms that appear next to him as he speaks. DOCTOR Have you been unable to overcome an UNBEARABLE LOSS, SEVERE GUILT, CLINICAL DEPRESSION? Have pills and hours upon hours of therapy let you down? Are you desperate for a solution? If that sounds like you, call New Beginnings for a...»

«www.itcon.org Journal of Information Technology in Construction ISSN 1874-4753 A PILOT STUDY OF A 3D GAME ENVIRONMENT FOR CONSTRUCTION SAFETY EDUCATION SUBMITTED: March 2010 REVISED: July 2010 PUBLISHED: January 2011 EDITOR: Turk Z. Ken-Yu Lin, Assistant Professor, University of Washington, WA, USA; kenyulin@uw.edu JeongWook Son, PhD Candidate, University of Washington, WA, USA; json@uw.edu Eddy M. Rojas, Professor and Director The Durham School of Architectural Engineering and Construction,...»

«PACKAGE LEAFLET PACKAGE LEAFLET: INFORMATION FOR THE USER COVERAM 5mg / 5mg tablets COVERAM 10mg / 5mg tablets COVERAM 5mg / 10mg tablets COVERAM 10mg / 10mg tablets perindopril arginine / amlodipine Read all of this leaflet carefully before you start taking this medicine.Keep this leaflet. You may need to read it again.If you have any further questions, ask your doctor or pharmacist. This medicine has been prescribed for you. Do not pass it on to others. It may harm them, even if their...»





 
<<  HOME   |    CONTACTS
2016 www.dissertation.xlibx.info - Dissertations, online materials

Materials of this site are available for review, all rights belong to their respective owners.
If you do not agree with the fact that your material is placed on this site, please, email us, we will within 1-2 business days delete him.