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«Sally Patton UNITARIAN UNIVERSALIST ASSOCIATION BOSTON Copyright © 2004 by the Unitarian Universalist Association of Congregations. All rights ...»

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3. National Down Syndrome Society, www.ndss.org.

4. FRAXA Research Foundation, www.fraxa.org.

5. Smith, p. 32.

6. Smith, p. 33.

7. Martha Beck, Expecting Adam: A True Story of Birth, Rebirth, and Everyday Magic (New York: Berkley Books, 2000), pp. 317–318.

8. Marilyn Trainer, Differences in Common: Straight Talk on Mental Retardation, Down Syndrome and Your Life (Bethesda, MD: Woodbine House, 1991), pp. 64–65.

9. Michael Berubé, Life As We Know It: A Father, a Family, and an Exceptional Child (New York: Vintage Books, 1998), pp. 34–35.

10. Smith, pp. 98–112.

11. Robert Brooks, The Self Esteem Teacher (Circle Pines, MN: American Guidance Service, 1991).

12. Brett Webb-Mitchell, Dancing with Disabilities, Opening the Church to All God’s Children (New York: United Church Press, 1997), p. 7.

Mood Disorders

1. David Fassler and Lynne Dumas, Help Me, I’m Sad: Recognizing, Treating, and Preventing Childhood and Adolescent Depression (New York: Penguin USA, 1998).

2. Edward Hallowell, When You Worry about the Child You Love (New York:

Simon & Schuster, 1996), pp. 174–178.

3. Barbara Ingersoll and Sam Goldstein, Lonely, Sad and Angry: A Parent’s Guide to Depression in Children and Adolescents (Plantation, FL: Specialty Press, 2001), p. 11.

4. Mitzi Waltz, Bipolar Disorders, A Guide to Helping Children and Adolescents (Sebastopol, CA: Patient-Centered Guides, 2000), p. 5. For a comprehensive source of information on mood disorders, visit the website of the

National Depressive and Manic-Depressive Association (NDMDA):

www.ndmda.org.

5. Waltz, p. 15.

6. Trudy Carlson, The Life of a Bipolar Child, What Every Parent and Professional Needs to Know (Duluth, MN: Benline Press, 2000), p. 114.

7. Waltz.

8. Demitir Papolos and Janice Papolos, The Bipolar Child: The Definitive

and Reassuring Guide to Childhood’s Most Misunderstood Disorder (New York:

Broadway Books, 2002), p. 16.

9. Waltz, p. 54.

232 Welcoming Children

10. Diane Berger and Lisa Berger, We Heard the Angels of Madness (New York: Quill, 1992), p. 10.

11. Association to Prevent Suicide, www.afsp.org.

12. Danielle Steel, His Bright Light: The Story of Nick Traina (New York:

Delta, 2000), p. xix.

13. National Association of Anorexia Nervosa and Associated Disorders, www.anad.org.

14. Peter Breggin, Toxic Psychiatry: Why Therapy, Empathy, and Love Must Replaced the Drugs, Electroshock, and Biochemical Theories of the New Psychiatry (New York: St. Martin’s Press, 1991).

15. Barry Neil Kaufman, Happiness Is a Choice (New York: Ballantine Books, 1991), pp. 108–109.

16. “Real, Fake Pills Both Change the Brain,” Boston Globe, December 2001.

17. Waltz, p. 217.

18. Wayne W. Dyer, There’s a Spiritual Solution to Every Problem (New York:

HarperCollins, 2001), p. 220.

19. Debra Whiting Alexander, Children Changed by Trauma (Oakland, CA:

New Harbinger, 1999).

20. Dyer, pp. 220 and 221.

21. Steel.

22. Carrie Fisher, quoted in Robert Epstein, “In Her Own Words,” Psychology Today, December 2001, pp. 36–37.

23. American Foundation for Suicide Prevention, www.afsp.org.

24. American Foundation for Suicide Prevention.

25. National Center for Post Traumatic Stress Disorder, www.ncptsd.org.

26. Based on Whiting Alexander’s three ways for restoring a child’s soul, found in Children Changed by Trauma.

Anxiety Disorders

1. Anxiety Disorders Association of America, www.adaa.org.

2. Signe A. Dayhoff, Diagonally-Parked in a Parallel Universe, Working through Social Anxiety (Placitas, NM: Effectiveness-Plus, 2000), p. 39.

3. John S. Dacey and Lisa B. Fiore, Your Anxious Child, How Parents and Teachers Can Relieve Anxiety in Children (San Francisco: Jossey-Bass, 2000), p. 32.

4. Maya Angelou, I Know Why the Caged Bird Sings (New York: Bantam, 1983).

5. Anxiety Disorders Association of America.

6. Dacey and Fiore.

7. Anxiety Disorders Association of America.

8. Tamar E. Chansky, Freeing Your Child from Obsessive-Compulsive Disorder (Three Rivers, MI: Three Rivers Press, 2001), p. 72.

9. National Center for Post Traumatic Stress Disorder, www.ncptsd.org.

233 Endnotes

10. Dacey and Fiore, p. 39.

11. Chansky, p. 4.

12. Chansky, p. 77.

13. Chansky, p. 75.

14. Anxiety Disorders Association of America.

15. Katharina Manassis, Keys to Parenting Your Anxious Child (Hauppage, NY: Barrons Educational Series, 1996), pp. 45–46.

16. Chansky, p. 32.

17. Herbert L. Gravitz, Obsessive Compulsive Disorder, New Help for the Family (Santa Barbara, CA: Healing Visions, 1998), p. 50.

18. Chansky, p. 28.

19. Chansky, p. 15.

20. Gravitz, p. 139.

21. Dacey and Fiore.

Disruptive Behavior Disorders

1. Edward Hallowell, When You Worry about the Child You Love (New York:





Simon & Schuster, 1996), p. 123.

2. Ross Greene, The Explosive Child (New York: Quill, 2001).

3. American Psychiatric Association, The Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition (Washington, DC: Author).

4. American Academy of Child and Adolescent Psychiatry, www.aacap.org.

5. Dr. Jim Chandler, www.klis/com/chandler.

6. Teens with Problems, www.teenswithproblems.com.

7. Hallowell.

8. Greene, p. 19.

9. Eduardo M. Bustamante, Treating the Disruptive Adolescent, Finding the Real Self Behind Oppositional Defiant Disorders (Lanham, MD: Jason Aronson, 2000).

10. Russell Barkley and Christine Benton, Your Defiant Child: 8 Steps to Better Behavior (New York: Guilford, 1998).

11. Hallowell.

12. Barkley and Benton.

13. Hallowell.

14. Larry K. Brendtro, Martin Brokenleg, and Steve Van Bockern, Reclaiming Youth at Risk, Our Hope for the Future (Bloomington, IL: National Educational Service, 1998), p. 44.

15. Brendtro et al., p. 3.

16. Brendtro et al., p. 47.

17. Robert Brooks and Sam Goldstein, Raising Resilient Children: Fostering Strength, Hope, and Optimism in Your Child (Chicago: Contemporary, 1998), p. 293.

234 Welcoming Children Schizophrenia

1. David Shore, ed., Schizophrenia: Questions and Answers (Bethesda, MD:

National Institute of Mental Health, 1986).

2. Shore.

3. Ken Steele and Claire Berman, The Day the Voices Stopped (New York:

Basic Books, 2001), p. 15.

4. Health Canada and the Schizophrenia Society of Canada, Schizophrenia:

A Handbook for Families, www.schizophrenia.ca.

5. Health Canada.

6. Peter Breggin, Toxic Psychiatry (New York: St. Martin’s Press, 1991).

7. John Weir Perry, The Far Side of Madness (Upper Saddle River, NJ:

Prentice Hall, 1974).

8. Daniel Fisher and Laurie Ahern, “People Can Recover from Mental Illness,” www.power2u.org.

9. Fisher and Ahern.

10. Fisher and Ahern.

11. Mark Bedillion, Psychiatric Survivor: From Misdiagnosed Mental Patient to Hospital Director (Baden, PA: Rainbow’s End, 1999).

12. Jim Moore, as quoted in “Introduction,” John Breeding, The Necessity of Madness and Unproductivity, www.wildestcolts.com.

13. Moore.

14. Robert Brooks and Sam Goldstein, Raising Resilient Children: Fostering Strength, Hope, and Optimism in Your Child (Chicago: Contemporary Books, 1998), p. 293.

Motor Disabilities

1. United Cerebral Palsy Organization, www.ucp.com.

2. Charlotte E. Thompson, Raising a Child with a Neuromuscular Disorder (New York: Oxford University Press, 1999), p. 20.

3. Alan E. Emery, Muscular Dystrophy, The Facts, 2nd ed. (New York: Oxford University Press, 2000), pp. 6–8.

4. Spina Bifida Association of America, www.sbaa.org, and Marlene Lutkenhoff (Ed.), Children with Spina Bifida: A Parents’ Guide (Bethesda, MD: Woodbine House, 1999).

5. Lutkenhoff.

6. Lisa Schoenbrodt (Ed.), Children with Traumatic Brain Injury, A Parents’ Guide (Bethesda, MD: Woodbine House, 2001), p. 2.

7. Kathleen Deyer Bloduc, “Introduction,” in His Name Is Joel: Searching for God in a Son’s Disability (Louisville, KY: Bridge Resources, 1999), p. 10.

8. Robert Brooks and Sam Goldstein, Raising Resilient Children: Fostering Strength, Hope, and Optimism in Your Child (Chicago: Contemporary Books, 1998), p. 293.

235 Endnotes Blindness and Visual Impairments

1. Cay M. Holbrook (Ed.), Children with Visual Impairments, A Parents’ Guide (Bethesda, MD: Woodbine House, 2001), p. 14.

2. Dorothy Herrmann, Helen Keller, A Life (New York: Knopf, 1998), p. 340.

3. Georgina Kleege, Sight Unseen (New Haven, CT: Yale University Press, 1999), p. 21.

4. Marla Runyon, No Finish Line: My Life as I See It (New York: Putnam, 2001).

5. Erick Weihenmayer, Braille Monitor, May 2002, p. 271.

6. Laurie Lawlor, Helen Keller: Rebellious Spirit (New York: Holiday House, 2001).

7. Holbrook, p. 163.

8. Weihenmayer, p. 264.

9. Gene Newman and Joni Eareckson Tada, All God’s Children: Ministry to Disabled Persons (Grand Rapids, MI: Zondervan, 1993), p. 86.

Deafness and Hardness of Hearing

1. Carol Padden and Tom Humphries Deaf in America, Voices from a Culture (Repr. ed.) (Boston: Harvard University Press, 1990), p. 2.

2. Padden and Humphries, p. 2.

3. National Association of the Deaf, www.Nad.org.

4. Harlan Lane, Robert Hoffmeister, and Ben Bahan, A Journey into the Deaf-World (San Diego: Dawn Sign Press, 1996).

5. Lane et al., p. x.

6. Lane et al., p. 125.

7. Arden Neisser, The Other Side of Silence, Sign Language and the Deaf Community in America (Washington, DC: Gallaudet University Press, 1990), p. 241.

8. Lane et al., p. 412.

9. Paul W. Ogden, The Silent Garden, Raising Your Deaf Child (Rev. ed.) (Washington, DC: Gallaudet University Press, 1996), pp. 47–48.

10. John W. Adams, You and Your Deaf Child, A Self-Help Guide for Parents of Deaf and Hard of Hearing Children, 2nd ed. (Washington, DC: Gallaudet University Press, 1997), p. 145.

11. Adams, pp. 57–58.

12. Daria Medwind and Denise Chapman Weston, Kid-Friendly Parenting with Deaf and Hard of Hearing Children (Washington, DC: Gallaudet University Press, 1995).

236 Welcoming Children Hidden Disabilities (Chronic Illnesses)

1. American Lung Association, www.lungUSA.org, and GlaxoSmithKline, www.ibreathe.com.

2. American Diabetes Association, www.diabetes.org.

3. Epilepsy Foundation of America, www.efa.org, and KidsHealth, www.

kidshealth.com.

4. American Heart Association, www.americanheart.org.

5. Arthritis Foundation, www.arthritis.org; the American College of Rheumatology, www.rheumatology.org; and the National Institute of Arthritis and Musculoskeletal and Skin Diseases, www.niamcs.nih.gov.

6. Lupus Foundation of America, www.lupus.org.

7. National Center for Chronic Disease Prevention and Health Promotion, www.cdc.gov/needphp/index.htm.

Resources Church-Related Topics Physical and Environmental Accessibility Center for an Accessible Society: www.accessiblesociety.org. Funded by the National Institute on Disability and Rehabilitation Research. Focuses on research and public education concerning disability and independent living issues.

Greenstein, Doreen. Backyards and Butterflies: Ways to Include Children with Disabilities in Outdoor Activities. Ithaca, NY: New York State Rural Health and Safety Council, 1993. This excellent manual by a Unitarian Universalist author for children and parents provides colorful pictures and easy-to-read instructions on projects that families of children with disabilities can do outdoors.

Stratton, Peter A., and Michael J. Crosbe, eds. A Basic Guide for Fair Housing Accessibility: Everything Architects and Builders Need to Know about the Fair Housing Act Accessibility Guidelines. New York: John Wiley and Sons, 2001.

Terry, Evan, ed. Pocket Guide to the ADA: American with Disabilities Act Accessibility Guidelines for Building and Facilities. Rev. ed. New York: John Wiley and Sons, 1997.

United States Access Board: www.access-board.gov. An independent federal agency committed to accessible design. Provides information on laws, technical assistance, and training.

Spiritual Accessibility Bolduc, Kathleen Deyer. His Name Is Joel: Searching for God in a Son’s Disability. Louisville, KY: Bridge Resources, 1999. A mother’s passionate portrayal of her faith journey concerning her child with severe disabilities.

–  –  –

Bolduc, Kathleen Deyer. A Place Called Acceptance: Ministry with Families of Children with Disabilities. Louisville, KY: Bridge Associates, 2001. Information on how churches can be welcoming places for children with disabilities Eisland, Nancy L., and Don E. Saliers, eds. Human Disability and the Service of God: Reassessing Religious Practice. Nashville, TN: Abingdon, 1998. A Christian perspective on the theological and spiritual call for churches to minister to people with disabilities National Organization on Disability. That All May Worship: An Interfaith Welcome to People with Disabilities. Washington, DC: Author, 1997. Basic information on welcoming people with disabilities into churches.

Newman, Gene, and Joni Eareckson Tada. All God’s Children: Ministry with Disabled Persons. Grand Rapids, MI: Zondervan, 1993. Simple steps for welcoming people with disabilities into churches.

Senelick, Richard C., and Karla Cougherty. Beyond Please and Thank You:

Disability Sensitivity Handbook for Families, Co-Workers and Friends.



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