«Sally Patton UNITARIAN UNIVERSALIST ASSOCIATION BOSTON Copyright © 2004 by the Unitarian Universalist Association of Congregations. All rights ...»
Schaefer, Charles, and Judith Friedman. Cat’s Got Your Tongue? A Story for Children Afraid to Speak. Washington, DC: Magination, 1992. For young children.
261 Resources Snyder, Zilpha Keatley. Fool’s Gold. New York: Delacorte, 1993. A fast-paced adventure book about a boy and his friendships and coming to terms with his claustrophobia. For young adults.
Summers, Marc, and Eric Hollander. Everything In Its Place: My Trials and Triumphs with Obsessive Compulsive Disorder. Los Angeles: J. P. Tarcher,
2000. For adolescents and young adults.
Disruptive Behavior Disorders Barkley, Russell A., and Christine M. Benton. Your Defiant Child: Eight Steps To Better Behavior. New York: Guilford, 1998. Excellent compassionate and helpful information.
Barkley, Russell A., Arthur L. Robin, and Gwenyth H. Edwards. Defiant Teens.
New York: Guilford, 1999. A thoughtful and compassionate look at why youths are defiant.
Brendtro, Larry K., Martin Brokenleg, and Steve Van Bockern. Reclaiming Youth at Risk: Our Hope for the Future. Bloomington, IL: National Educational Service, 1998. An inspiring approach to healing our troubled and alienated youth from a Native American perspective.
Bustamante, Eduardo M. Treating the Disruptive Adolescent: Finding the Real Self Behind Oppositional Defiant Disorders. Northvale, NJ: Jason Aronson, 2000. A compassionate approach to working with children with ODD.
Chandler, Jim: www.klis.com/chandler/HOME.htm. Describes several psychological disorders.
Eddy, J. Mark. Aggressive and Defiant Behavior: The Latest Assessment and Treatment Strategies for the Conduct Disorders. Eau Claire, WI: Compact Clinicals, 2001. Very technical but one of few resources available on conduct disorders.
Taylor, John F. From Defiance to Cooperation: Real Solutions for Transforming the Angry, Defiant, Discouraged Child. Roseville, CA: Prima, 2001. Provides specific, sensible, and easy-to-implement suggestions for working with and living with a child with ODD.
Teens with Problems: www.teenswithproblems.com. A resource for problems that are particularly associated with adolescents.
Tobin, L. What Do You Do with a Child Like This? Duluth, MN: Whole Person Associates, 1991. Provides insight into the world of troubled children, with guidelines on how to relate to and teach them.
Willman, Robert, and Judyth Reichenberg-Willman. Drug-Free Kids: Homeopathic Medicine for Defiant, Aggressive, and Violent Children. Roseville, CA: Prima, 1999. Information for those looking for alternative approaches.
262 Welcoming Children Books for Children and Youth Sparkes, Beatrice, ed. Go Ask Alice. New York: Pocket, 1998. The powerful real-life diary of a teenager who struggles with addiction to drugs.
Schizophrenia Bedeillion, Mark. Psychiatric Survivor: From Misdiagnosed Patient to Hospital Director. Baden, PA: Rainbow’s End, 1999. One person’s compelling story of recovering from schizophrenia.
Breeding, John. The Necessity of Madness and Unproductivity: Psychiatric Oppression or Human Transformation. Available online: www.wildestcolts.
com. A social commentary on mental illness in the United States.
Breggin, Peter R., and David Cohen. Your Drug May Be Your Problem. Reading, MA: Perseus, 2000. Information on the harmful side effects of medication.
Breggin, Peter: www.breggin.com. Information on Breggin’s books and articles, along with other information on healing from schizophrenia.
Edelman, Eva. Natural Healing for Schizophrenia and Other Common Mental Disorders. Eugene, OR: Borage, 2001. For those who want information on alternative, natural approaches.
Glasser, William, and Peter R. Breggin. Counseling with Choice Theory. New York: Quill, 2001. An explanation of choice therapy in treating people with mental illness.
Hoffer, Abram. Orthomolecular Treatment for Schizophrenia: Megavitamin Supplements and Nutritional Strategies for Healing and Recovery. New York: McGraw-Hill, 1999. Excellent information on a treatment approach with proven success.
Mad Nation: www.madnation.cc. People working together for social justice and human rights in mental health.
MentalWellness.com: www.mentalwellness.com. Lifestyle types and counseling service for people with schizophrenia.
Mindfreedom: www.mindfreedom.org. Provides information about and for psychiatric survivors, including interesting and moving stories from an oral history project.
National Alliance for the Mentally Ill: www.nami.org. A nonprofit, grassroots organization of people with severe mental illnesses and their families and friends. Offers support and advocacy.
National Empowerment Center: www.power2u.org. Practical information to help people recover. One of the best sites representing the psychiatric survivor point of view.
Perry, John Weir. Trials of the Visionary Mind: Spiritual Emergency and the Renewal Process. Albany, NY: State University of New York, 1998.
Discussion of schizophrenia from a spiritual perspective.
263 Resources Remschmidt, Helmut, ed. Schizophrenia in Children and Adolescents. Cambridge, England: Cambridge University, 2001. Highly technical information but one of the few books addressing schizophrenia in children.
Schiozophrenia-Help Resource Center: www.schizophrenia-help.com.
Information on schizophrenia.
Schizophrenia Society of Canada: www.schizophrenia.ca. Promotes public awareness and education and offers family support, advocacy, and initiatives and programs to fund research.
Steele, Ken, and Claire Berman. The Day the Voices Stopped. New York: Basic,
2001. The personal story of a man with schizophrenia.
Torrey, E. Fuller. Surviving Schizophrenia: A Manual for Families, Consumers, and Providers. 4th ed. New York: Quill, 2001. A well-known expert discusses treating schizophrenia. Supported by the National Association on Mental Illness.
Treatment Advocacy Center: www.psycglaws.org. Information on Dr. E.
Fuller Torrey’s views, books, and articles plus other information.
Walker, Sydney, III. A Dose of Sanity: Mind, Medicine, and Misdiagnosis. New York: John Wiley & Sons, 1998. How people are sometimes misdiagnosed as having schizophrenia when it is another physical problem.
Whitaker, Robert. Mad in America: Bad Science, Bad Medicine, and the Enduring Mistreatment of the Mentally Ill. Reading, MA: Perseus, 2002 A detailed look at the science and social beliefs behind the treatment of people with schizophrenia.
www.schizophrenia.com. Hosts chat groups and provides information and resources.
Books for Children and Youth Hanson, Regina. The Face at the Window. New York: Clarion, 1997. With her parents’ help, a young girl in Jamaica gets over her fear of an elderly neighbor with mental illness. For children ages six to eight.
Johnson, Angela. Humming Whispers. New York: Scholastic, 1996. A fourteen-year-old girl copes with her sister’s schizophrenia and gets help from her family and community. For adolescents.
Motor Disabilities Sports American Academy for Cerebral Palsy: www.aacpdm.org. Research and education, along with an online library and multimedia resources.
Canadian Wheelchair Sports Association: www.cwsa.ca. Information on wheelchair sports in Canada.
Cerebral Institute of Discovery: www.cerebral.org. A comprehensive collection of resources about neurological topics.
264 Welcoming Children Cerebral Palsy Cerebral Palsy Association: www.ucp.org. A comprehensive informational site as well as the leading advocacy organization for people with cerebral palsy.
Dormans, John P. Caring for Children with Cerebral Palsy: A Team-Based Approach. Baltimore, MD: Paul H. Brookes, 1998. The definitive guide to the interdisciplinary care of children with cerebral palsy.
Geralis, Elaine, ed. Children with Cerebral Palsy: A Parents’ Guide. Bethesda, MD: Woodbine House, 1998. Comprehensive information on the treatment and care of a child with cerebral palsy.
Kennedy, Marie A. My Perfect Son Has Cerebral Palsy: A Mother’s Guide of Helpful Hints. n.p.: First Books Library, 2001. Good practical advice offered in a hopeful yet candid way.
Kramer, Laura Shapiro. Uncommon Voyage: Parenting a Special Needs Child.
Berkely, CA: North Atlantic, 2001. A mother’s story of hope and struggle in caring for her son with cerebral palsy.
National Disability Sports Alliance: www.ndsonline.org. The coordination of competitive sports for individuals with cerebral palsy, traumatic brain injury, and stroke.
Wheelchair Sports USA: www.wsusa.org. Dedicated to the guidance and growth of wheelchair sports.
Neuromuscular Disease Children with Duchenne: www.findacure.com. An organization dedicated to finding a cure for children with Duchenne muscular dystrophy.
Emery, Alan E. Muscular Dystrophy: The Facts. 2nd ed. New York: Oxford University, 2000. Describes all the muscular dystrophies with minimal technical jargon.
Muscular Dystrophy Association: www.mdausa.org. A voluntary health agency that provides medical and community services as well as professional and public health education.
Muscular Dystrophy Family Foundation: www.mdff.org. Provides adaptive equipment and emotional support to individuals and families affected by neuromuscular diseases.
Neuroland: www.neuroland.com. Information about neuromuscular disease.
Siegel, Irwin M. Muscular Dystrophy in Children: A Guide for Families.
Gardena, CA: SCB Distributors, 1999. Good practical information.
Stepank, Mattie J. T. Heartsongs. New York: Hyperion, 2002. Mattie is a boy with muscular dystrophy who writes wonderful spiritual poems about life.
Thompson, Charlotte E. Raising a Child with a Neuromuscular Disorder. New York: Oxford University, 1999. An excellent book for parents. Provides thorough information on resources, advocacy, treatment, education, and so on.
265 Resources Spina Bifida Children with Spina Bifida: www.waisman.wisc.edu/~rowley/sb-kids/index.
htmlx. A resource page for parents.
Driscoll, Jean, with Janet and Geoff Benge. Determined to Win. New York:
Waterbrook, 2000. Driscoll, an Olympic wheelchair winner, tells her story.
Lutkenhoff, Marlene, ed. Children with Spina Bifida: A Parents’ Guide.
Bethesda, MD: Woodbine House, 1999. Good practical information.
Sandler, Adrian. Living with Spina Bifida: A Guide for Families and Professionals. Raleigh, NC: University of North Carolina, 1997. Highly useful and thorough information.
S-B Teens: http://_sb_teens.homestead.com. An online support group for teens with spina bifida.
Spina Bifida Association of America: www.sbaa.org. Comprehensive information and resources on spina bifida.
Spinal Cord Injury American Paraplegia Society: www.apssci.org. Focused on improving the quality of medical care for people with spinal cord injury.
American Spinal Injury Association (ASIA): www.asia-spinalinjury.org. This organization facilitates research and fosters communication concerning spinal cord injury.
Christopher and Dana Reeve Paralysis Resource Center: www.paralysis.org.
A program of the Christopher Reeve Paralysis Foundation. An excellent source of comprehensive resources and information on spinal cord injury.
National Spinal Cord Injury Association (NSCIA): www.spinalcord.org. One of the oldest organizations concerned with spinal cord injury.
Palmer, Sara, Kay Harris Kriegsman, and Jeffrey B. Palmer. Spinal Cord Injury, A Guide for Living. Baltimore, MD: Johns Hopkins University,
2000. Provides a complete guide toward recovery.
Reeve, Christopher. Nothing Is Impossible: Reflections on a New Life. New York: Random House, 2002. Reeve, an actor and a Unitarian Universalist author, provides more in-depth and inspiring reflection about his life.
Reeve, Christopher. Still Me. New York: Ballantine, 1999. Reeve, an actor and Unitarian Universalist author, describes what his life has meant since his paralyzing accident.
Senelick, Richard C., and Karla Dougherty. The Spinal Cord Injury Handbook. Birmingham, AL: HealthSouth, 1998. Practical and helpful information.
Williams, Margie. Journey to Well: Learning to Live after Spinal Cord Injury.
Newcastle, CA: Altarfire, 1997. Having suffered a severe spinal cord injury at age fifty-three, Williams describes her experiences and provides practical applications for wellness.
266 Welcoming Children Traumatic Brain Injury American Brain Tumor Association: www.abta.org/whoweare/index.html.
Information and resources on brain injuries from brain tumors.
Brain Injury Association: www.biausa.org. Comprehensive information and resources on brain injury.
Brain Injury Society: www.bisociety.org. A site for brain-injured individuals and their families.
Head Injury Hotline: www.headinjury.com. A place to get information, join discussion groups, and build advocacy and self-care skills.
Hylands (in Canada): www.hyghlands.com. Provides consulting to schools and the like about children with brain injury.
Lloyd, Donald J., Shannon L. Kehoe, and Susan E. Lloyd. Smile and Jump
High! The True Story of Overcoming a Traumatic Brain Injury. n.p.:
Starlight, 2001. A compelling story of triumph over brain injury.
Schoenbrodt, Lisa, ed. Children with Traumatic Brain Injury: A Parents’ Guide. Bethesda, MD: Woodbine House, 2001. Comprehensive information for parents.
Senelick, Richard C., and Karla Dougherty. Living with Brain Injury: A Guide for Families. 2nd ed. Birmingham, AL: HealthSouth, 2001. Up-to-date information on treating and living with brain injury.
Winslade, William J. Confronting Traumatic Brain Injury: Devastation, Hope, and Healing. New Haven, CT: Yale University, 1999. Compelling facts and arguments for the prevention of traumatic brain injury.
Books for Children and Youth Burnett, Gail Lemley, Stephen D. Rioux, Brenda Wong, and John Coopersmith Gold. Muscular Dystrophy (Health Watch). Rev. ed. Berkeley Heights, NJ: Enslow, 2000. Each chapter discusses someone with muscular dystrophy, providing facts and pictures. For teens.
Carlson, Nancy L. Arnie and the New Kid. New York: Puffin, 1992. Arnie teases Phillip, who is in a wheelchair, but the two soon become friends.
For children ages four to eight.